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Background
Despite the significant impact of chronic symptoms on quality of life with cystic fibrosis (CF), the role of palliative care in management of this disease is not well defined. The coping, goal assessment, and relief from evolving CF symptoms (CF‐CARES) model is a primary palliative care intervention designed to provide chronic symptom management at all stages of the disease. The goal of...
Current palliative care tools do not address distressing chronic symptoms that are most relevant to cystic fibrosis.A CF-specific structured assessment based on a primary palliative care framework was administered to 41 adolescents and adults with CF. Descriptive and correlational analyses were conducted.Patients reported numerous physical and psychological symptoms (mean of 10 per patient), with...
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