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Introduction
Advance care planning (ACP), though recommended, has not been studied in adolescents with cystic fibrosis (CF). This quality improvement project engaged adolescents with advanced CF disease in ACP and assessed patient and CF provider attitudes and preferences regarding ACP discussions and tools.
Materials and Methods
Patients ≤22 years with advanced CF (FEV1 ≤40% predicted, >2 pulmonary...