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Objective
To understand experiences of patients with genitourinary cancer who experienced delayed cancer care due to the COVID‐19 pandemic.
Methods
We conducted a mixed methods study with an explanatory sequential design. Qualitative findings are reported here. Patients with muscle invasive bladder, advanced prostate or kidney cancer were eligible. Participants were selected for interviews if they...
Background
Patient‐centered approaches to research design are particularly important for diseases with complex treatment decision‐making, such as recurrent, high‐grade non–muscle‐invasive bladder cancer (NMIBC). The objective of this article is to describe patient and public involvement (PPI) in designing a large, pragmatic observational trial and to articulate barriers, challenges, and lessons learned...
BACKGROUND
Patient‐centered research requires the meaningful involvement of patients and caregivers throughout the research process. The objective of this study was to create a process for sustainable engagement for research prioritization within oncology.
METHODS
From December 2014 to 2016, a network of engaged patients for research prioritization was created in partnership with the Bladder Cancer...
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