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Objective In part I of the study, a health‐related quality of life (HRQoL) inventory for Cushing’s disease (CD), the Tuebingen Cushing‐25 quality of life inventory (Tuebingen CD‐25) was developed. In this second part, we aimed to assess normative data from healthy controls (HC) with which the individual patients’ scores can be compared.
Design Cross‐sectional study.
Participants Sixty‐three patients...
Objective To develop a disease‐specific questionnaire for Cushing’s disease (CD), the Tuebingen Cushing’s disease quality of life inventory (Tuebingen CD‐25).
Methods Sources for item generation consisted of technical literature, interviews with patients and the rating of neurosurgeons, endocrinologists and a neuropsychologist. A preliminary inventory with 64 items was handed out to 63 CD patients...