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Introduction: Subject recruitment is critical for understanding fatal diseases like ALS, however linking patients with researchers can be challenging. The U.S. population‐based National ALS Registry allows recruitment of persons with ALS (PALS) for research opportunities. Methods: The Registry's Research Notification Mechanism was used to recruit PALS aged ≥21 years; participants completed a Web‐based...
This study reports the results of a long-term economic evaluation of riluzole in the treatment of amyotrophic lateral sclerosis (ALS) versus best supportive care in the United Kingdom. The aim was to assess the cost implications of the life extension offered by riluzole through cost utility analysis based on patient assessed utilities of different health states.A Markov model was used to assess the...
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