Mai‐Britt Guldin

article

Dyadic coping in specialized palliative care intervention for patients with advanced cancer and their caregivers: Effects and mediation in a randomized controlled trial

Annika Heymann‐Horan, Pernille Envold Bidstrup, Christoffer Johansen, Nina Rottmann, more

Objective Specialized palliative care (SPC) interventions increasingly include patient‐caregiver dyads, but their effects on dyadic coping are unknown. We investigated whether an SPC and dyadic psychological intervention increased aspects of dyadic coping in patients with advanced cancer and their caregivers, whether dyad characteristics moderated effects and whether aspects of dyadic coping mediated...

article

Preloss grief in family caregivers during end‐of‐life cancer care: A nationwide population‐based cohort study

Mette Kjaergaard Nielsen, Mette Asbjoern Neergaard, Anders Bonde Jensen, Peter Vedsted, more

Psycho‐Oncology > 26 > 12 > 2048 - 2056

Objective Severe grief symptoms in family caregivers during end‐of‐life cancer trajectories are associated with complicated grief and depression after the loss. Nevertheless, severe grief symptoms during end‐of‐life caregiving in caregivers to cancer patients have been scarcely studied. We aimed to explore associations between severe preloss grief symptoms in caregivers and modifiable factors such...

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A process evaluation of systematic risk and needs assessment for caregivers in specialised palliative care

Kia Toft Thomsen, Mai-Britt Guldin, Mette Kjærgaard Nielsen, Chaitali Laura Ollars, more

BMC Palliative Care > 2017 > 16 > 1 > 1-8

Background Caregiving is strenuous and it may be associated with adverse psychological outcomes. During the palliative care trajectory, there are unique opportunities for providing support and preventing poor bereavement outcome. However, the tasks of palliative care staff in relation to caregivers are often unclear in the daily practice. Assessment is recommended to establish risk and needs and standards...

article

Predictors of Complicated Grief and Depression in Bereaved Caregivers: A Nationwide Prospective Cohort Study

Mette Kjaergaard Nielsen, Mette Asbjoern Neergaard, Anders Bonde Jensen, Peter Vedsted, more

Journal of Pain and Symptom Management > 2017 > 53 > 3 > 540-550

Complicated grief and depressive symptoms in bereaved caregivers have been associated with female gender, spousal relation, and preloss psychological distress, but population-based, prospective studies are scarce.We aimed to investigate whether severe preloss grief and depressive symptoms, caregiver burden, preparedness for death, communication about dying, and socioeconomic factors predicted complicated...

article

Remaining Lifetime After Recognition of Terminal Illness Depends on Diagnosis: A Nationwide Population-Based Cohort Study

Cathrine Bell, Mette K. Nielsen, Mette A. Neergaard, Mai-Britt Guldin, more

Journal of Pain and Symptom Management > 2017 > 53 > 1 > 116-123

Timely recognition of the terminal phase of life will benefit patients and caregivers as it may facilitate advance care planning and support.The objective of this study was to investigate the remaining lifetime of patients entering a physician-assessed terminal phase and to analyze variation in remaining lifetime according to diagnosis and sociodemographic factors.Danish National Health Registers...

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Do we need to change our understanding of anticipatory grief in caregivers? A systematic review of caregiver studies during end-of-life caregiving and bereavement

Mette Kjaergaard Nielsen, Mette Asbjoern Neergaard, Anders Bonde Jensen, Flemming Bro, more

Clinical Psychology Review > 2016 > 44 > C > 75-93

Caregivers of terminally ill patients may experience anticipatory grief or low levels of preparedness for the patient's impending death. Both concepts are related to a forewarning of the impending loss. Anticipatory grief has been suggested to be grief work before the loss, which would improve bereavement outcome, but recent studies indicate a negative impact. Hence, this review systematically investigates...

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Psychological distress, health, and socio-economic factors in caregivers of terminally ill patients: a nationwide population-based cohort study

Mette Kjaergaard Nielsen, Mette Asbjoern Neergaard, Anders Bonde Jensen, Flemming Bro, more

Supportive Care in Cancer > 2016 > 24 > 7 > 3057-3067

Purpose At some point in life, most people become caregivers to a terminally ill relative. Previous studies have shown that many caregivers experience psychological distress and declining physical health, but these studies have predominantly been conducted in specialized palliative care settings. Therefore, caregiver studies with a population-based approach are needed. We aimed to describe socio-economic...

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Translation, adaptation and data quality of a Danish version of the Burden Scale for Family Caregivers

Trine Brogaard, Mette Asbjørn Neergaard, Mai‐Britt Guldin, Ineta Sokolowski, more

Scandinavian Journal of Caring Sciences > 27 > 4 > 1018 - 1026

BackgroundThe burden of caregiving can have various negative consequences. There is a need for health professionals to be able to measure the burden of caregiving among relatives of end‐stage cancer patients in a valid way. The Burden Scale for Family Caregivers (BSFC) has 28 items and was developed as a clinical tool for measuring the self‐reported burden among family caregivers caring for a relative...

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Healthcare utilization of bereaved relatives of patients who died from cancer. A national population‐based study

Mai‐Britt Guldin, Anders Bonde Jensen, Robert Zachariae, Peter Vedsted

Psycho‐Oncology > 22 > 5 > 1152 - 1158

ObjectiveBereavement is likely to result in an increased healthcare utilization. However, little is known about the impact of bereavement on an entire healthcare system, and there is no knowledge of what bereavement requires in terms of healthcare planning. Improved knowledge of patterns of healthcare utilization during bereavement may help optimize targeted support. The objective of this study was...

article

Complicated grief and need for professional support in family caregivers of cancer patients in palliative care: a longitudinal cohort study

Mai-Britt Guldin, Peter Vedsted, Robert Zachariae, Frede Olesen, more

Supportive Care in Cancer > 2012 > 20 > 8 > 1679-1685

Objectives There is little research on complicated grief (CG) in family caregivers in palliative care. The aim of the study was to assess the levels of complicated grief and depression in family caregivers after the death of a relative with cancer, to identify their need for support, to compare the palliative team staff’s risk assessment of the relatives’ grief reaction with measured levels of CG...

article

A confirmatory factor analysis of combined models of the Harvard Trauma Questionnaire and the Inventory of Complicated Grief-Revised: Are we measuring complicated grief or posttraumatic stress?

Maja O’Connor, Mathias Lasgaard, Mark Shevlin, Mai-Britt Guldin

Journal of Anxiety Disorders > 2010 > 24 > 7 > 672-679

The aim of this study was to assess the factorial structure of complicated grief (CG) and investigate the relationship between CG and posttraumatic stress disorder (PTSD) through the assessment of models combining both constructs. The questionnaire was completed by elderly, married respondents with a history of at least one significant, interpersonal loss (145 males and 147 females, 60–81 years)....

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Search results for: Mai‐Britt Guldin

Dyadic coping in specialized palliative care intervention for patients with advanced cancer and their caregivers: Effects and mediation in a randomized controlled trial

Preloss grief in family caregivers during end‐of‐life cancer care: A nationwide population‐based cohort study

A process evaluation of systematic risk and needs assessment for caregivers in specialised palliative care

Predictors of Complicated Grief and Depression in Bereaved Caregivers: A Nationwide Prospective Cohort Study

Remaining Lifetime After Recognition of Terminal Illness Depends on Diagnosis: A Nationwide Population-Based Cohort Study

Do we need to change our understanding of anticipatory grief in caregivers? A systematic review of caregiver studies during end-of-life caregiving and bereavement

Psychological distress, health, and socio-economic factors in caregivers of terminally ill patients: a nationwide population-based cohort study

Translation, adaptation and data quality of a Danish version of the Burden Scale for Family Caregivers

Healthcare utilization of bereaved relatives of patients who died from cancer. A national population‐based study

Complicated grief and need for professional support in family caregivers of cancer patients in palliative care: a longitudinal cohort study

A confirmatory factor analysis of combined models of the Harvard Trauma Questionnaire and the Inventory of Complicated Grief-Revised: Are we measuring complicated grief or posttraumatic stress?

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