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We compared psychosocial functioning of children with cancer and their caregivers in several phases of the coronavirus disease 2019 (COVID‐19) pandemic to before COVID‐19. One or more questionnaires on health‐related quality of life (HRQoL) or fatigue of children or distress of their caregivers was available from 1644 families. In children with cancer, HRQoL was stable throughout the COVID‐19 pandemic...
In the context of clinical research, investigators have historically selected the outcomes that they consider to be important, but these are often discordant with patients’ priorities. Efforts to define and report patient-centered outcomes are gaining momentum, though little work has been done in nephrology. We aimed to identify patient and caregiver priorities for outcomes in hemodialysis.Nominal...
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