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Objective
To examine the characteristics of the social networks of families living with parental cancer and the kind of social support they provide compared with what the families report having received.
Background
Parental cancers are highly distressing for both parents and children. Among other concerns, families report a severe lack of social support. However, we know little about these families’...
Objective
To describe the developmental trajectories of quality of life (QoL) in a large cohort of children with epilepsy, and to assess the relative contribution of clinical, psychosocial, and sociodemographic variables on QoL trajectories.
Methods
Five assessments during a 28‐month prospective cohort study were used to model trajectories of QoL. Participants were recruited with their parents...
Although seizure control is a critical goal for persons with epilepsy (PWE) from the biomedical perspective, there is growing support for approaches that take into account the effect of epilepsy on the whole person (the biopsychosocial perspective). We hypothesized that PWE who report normal activity limitations due to epilepsy and poor social/emotional support would report poor mental health regardless...
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