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BackgroundThe Patient Reported Outcomes Measurement Information System (PROMIS®) has developed pediatric self‐report scales measuring several unidimensional health attributes (domains) suitable for use in clinical research, but these measures have not yet been validated in sickle cell disease (SCD).
ProcedureA convenience sample of SCD children, aged 8–17 years, from two sickle cell programs was...
BackgroundThe Patient‐Reported Outcomes Measurement Information System® (PROMIS®) created pediatric self‐report scales measuring a variety of health attributes (domains), but their responsiveness to changes in health status has not yet been determined in children with sickle cell disease (SCD).
ProcedureA convenience cohort of symptomatic SCD children, aged 8–17 years, was asked to complete PROMIS...
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