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Objective
To prospectively delineate self‐reported health‐related quality of life (HRQOL) of adolescents and young adults (AYAs) 8 and 10 years after an epilepsy diagnosis and evaluate the degree of AYA‐parent agreement in ratings of AYA’s HRQOL.
Methods
Data came from the Health‐Related Quality of Life in Children with Epilepsy Study (HERQULES), a 10‐year longitudinal study of children, aged 4‐12 years,...
Objective
This study estimated trajectories of health‐related quality of life (HRQOL) over a 10‐year period among children newly diagnosed with epilepsy. We also modeled the characteristics of children, parents, and families associated with each identified trajectory.
Methods
Data came from the HERQULES (Health‐Related Quality of Life in Children With Epilepsy Study), a Canada‐wide prospective...
Objective
Parental depression significantly impacts children’s health and well‐being. This study aimed to (1) estimate the prevalence of depressive symptoms, at six time points, among mothers over the first 10 years after their child was diagnosed with epilepsy; (2) identify trajectories of maternal depressive symptoms over time; and (3) identify baseline factors associated with each trajectory....
This systematic review aimed to 1) describe the quality of life (QOL) of parents of children with childhood-onset epilepsy (CWE), 2) identify factors associated with parental QOL, and 3) evaluate the association between parents' QOL and children's psychological well-being.We conducted a comprehensive search of MEDLINE, EMBASE, and PsycINFO and conducted forward and backward citation tracking. A total...
Purpose Epilepsy in childhood extends far beyond seizures and affects child and parental well-being. The long-term impact of childhood-onset epilepsy on parental well-being is unknown. This study assessed health-related quality of life (HRQOL) in mothers 10 years after their child’s diagnosis of epilepsy. Methods Data come from the Health-Related Quality of Life in Children with Epilepsy Study,...
PurposeLittle is known about subgroups of children with epilepsy who may experience less favorable outcomes over time. The objectives of this study were to document trajectories of health‐related quality of life (HRQL) and to identify predictors of the trajectory group in children with new‐onset epilepsy.
MethodsData were obtained from the Health Related Quality of Life in Children with Epilepsy...
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