Search results for: David Page

Items from 1 to 20 out of 92 results

article

Test–retest reliability of a mobile application of the patient reported outcomes burdens and experiences (PROBE) study

Randall Curtis, Joanne Wu, Alfonso Iorio, Neil Frick, more

Introduction The Patient Reported Outcomes, Burdens, and Experiences (PROBE) questionnaire is a patient‐reported outcome tool that assesses quality of life and disease burden in people with haemophilia (PWH). Aim To assesses the test–retest reliability of PROBE when completed using the mobile phone application. Methods We recruited PWH, including carriers, and individuals with no bleeding disorders...

article

A national assessment of standards of care for inherited bleeding disorders in Canada

David Page, Sarah Crymble, Lawrence Jardine, JoAnn Nilson, more

Haemophilia > 29 > 6 > 1450 - 1455

Aim The Canadian Integrated and Comprehensive Care Standards for Inherited Bleeding Disorders were adopted in June 2020. In early 2023, a self‐assessment of each of the 26 Canadian inherited bleeding disorder treatment centre's (IBDTCs) capacity to meet the Standards was conducted. The goal was to validate the standards by assessing appropriateness and adherence. As a result, centres can compare...

article

Patient‐derived assessment tool using musculoskeletal ultrasound for validation of haemarthrosis

Srila Gopal, Richard F. W. Barnes, Lena M. Volland, David Page, more

Haemophilia > 28 > 5 > 842 - 848

Introduction Haemophilia patients experience painful joint episodes which may or may not be associated with haemarthrosis. We sought to validate a questionnaire developed by the Canadian Haemophilia Society using point‐of‐care musculoskeletal ultrasound (POC MSKUS) to confirm haemarthrosis. Methods The questionnaire comprised of 20 questions (10 each associated with haemarthrosis and arthritis...

article

Invisible bleeds: Lived experiences and barriers to care for men with hemophilia

Sumedha Arya, Fartoon M. Siad, Pamela Wilton, David Page, more

Journal of Thrombosis and Haemostasis > 20 > 2 > 296 - 306

Introduction Guidelines of the World Federation of Hemophilia support the provision of equitable, optimal care for people with hemophilia (PWH). However, limited research exists examining the lived experiences of PWH or the barriers to care they may encounter. The primary objective of this exploratory study was to describe the experiences of men with hemophilia in Canada. Methods We conducted a...

article

Evaluation of the sexual health in people living with hemophilia

Federico Germini, Chatree Chai‐Adisaksopha, Drashti Pete, Randall Curtis, more

Haemophilia > 27 > 6 > 993 - 1001

Background Knowledge about sexual health, difficulty with sexual activity and intimacy (sexual difficulty), in people with hemophilia is little understood. Objectives The objectives were to determine the prevalence of sexual difficulty in people living with hemophilia (PWH) compared to people with no bleeding disorders (PWNoBD), and to determine factors associated with it. Methods This was an...

article

Vaccination against COVID‐19: Rationale, modalities and precautions for patients with haemophilia and other inherited bleeding disorders

Radoslaw Kaczmarek, Magdy El Ekiaby, Daniel P. Hart, Cedric Hermans, more

Haemophilia > 27 > 4 > 515 - 518

article

“They don’t really take my bleeds seriously”: Barriers to care for women with inherited bleeding disorders

Sumedha Arya, Pamela Wilton, David Page, Laurence Boma‐Fischer, more

Journal of Thrombosis and Haemostasis > 19 > 6 > 1506 - 1514

Introduction Women with inherited bleeding disorders experience excessive bleeding that may impair their quality of life, making early diagnosis and treatment critical. However, the experiences of these women regarding access to care has been minimally described. The primary objective of this study was to evaluate and describe barriers to care for women with bleeding disorders. This study was a continuation...

article

Non‐severe haemophilia: Is it benign? – Insights from the PROBE study

Chatree Chai‐Adisaksopha, Declan Noone, Randall Curtis, Neil Frick, more

Haemophilia > 27 > S1 > 17 - 24

Introduction There are limited data on the impact of haemophilia on health status and health‐related quality of life (HRQL) in people with non‐severe (mild and moderate) haemophilia. Aim To evaluate the health status of people living with mild or moderate haemophilia. Methods Data on respondents with no bleeding disorder (NoBD), mild and moderate haemophilia patients were drawn from the PROBE...

article

Gene therapy to cure haemophilia: Is robust scientific inquiry the missing factor?

Glenn F. Pierce, Radoslaw Kaczmarek, Declan Noone, Brian O’Mahony, more

Haemophilia > 26 > 6 > 931 - 933

article

“Everything was blood when it comes to me”: Understanding the lived experiences of women with inherited bleeding disorders

Sumedha Arya, Pamela Wilton, David Page, Laurence Boma‐Fischer, more

Journal of Thrombosis and Haemostasis > 18 > 12 > 3211 - 3221

Introduction Despite the many symptoms that women with inherited bleeding disorders experience, no study has specifically sought to explore and understand the lived experiences of these women, nor the barriers to care that they may encounter. The primary objective of this study was to describe the lived experiences of women with inherited bleeding disorders. Methods Inclusion criteria for study...

article

Setting the scene: Historical overview of challenges and what led to advances in comprehensive care in developed countries, the Canadian experience

David Page

Haemophilia > 26 > S3 > 4 - 5

The history of the development of comprehensive care for hemophilia and other inherited bleeding disorders in Canada has been long and full of challenges. From limited in‐patient treatment with plasma and cryoprecipitate in a few major centres in the 1950s and 1960s, a network of Hemophilia Treatment Centres (HTCs) offering multi‐disciplinary comprehensive care, home infusion and prophylaxis was established...

article

Tumor cell sensitivity to vemurafenib can be predicted from protein expression in a BRAF-V600E basket trial setting

Molly J. Carroll, Carl R. Parent, David Page, Pamela K. Kreeger

BMC Cancer > 2019 > 19 > 1 > 1-13

Background Genetics-based basket trials have emerged to test targeted therapeutics across multiple cancer types. However, while vemurafenib is FDA-approved for BRAF-V600E melanomas, the non-melanoma basket trial was unsuccessful, suggesting mutation status is insufficient to predict response. We hypothesized that proteomic data would complement mutation status to identify vemurafenib-sensitive tumors...

article

From the voices of people with haemophilia A and their caregivers: Challenges with current treatment, their impact on quality of life and desired improvements in future therapies

Ryan E. Wiley, Charles P. Khoury, Adrian W. K. Snihur, Marni Williams, more

Haemophilia > 25 > 3 > 433 - 440

Introduction Haemophilia A is a chronic disease requiring frequent intravenous infusions of recombinant factor VIII. Previous studies have shown that challenges associated with current treatments may have significant impacts on quality of life (QoL) that are as important as the health outcomes conferred by the therapy. Emerging therapeutic innovations offer the potential to mitigate treatment‐related...

article

Exploring regional variations in the cross‐cultural, international implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) study

Chatree Chai‐Adisaksopha, Mark W. Skinner, Randall Curtis, Neil Frick, more

Haemophilia > 25 > 3 > 365 - 372

Background The Patient Reported Outcomes Burdens and Experience (PROBE) study has developed and validated the PROBE questionnaire for assessing patient‐reported outcomes in people with haemophilia and participants without bleeding disorders. Objective To explore the regional variations in the international implementation of the PROBE questionnaire. Methods Data were collected from participants...

article

The 1st WFH Gene Therapy Round Table: Understanding the landscape and challenges of gene therapy for haemophilia around the world

Glenn F. Pierce, Donna Coffin, Members of the WFH Gene Therapy Round Table Program Committee and Organizing Committee, David Lillicrap, more

Haemophilia > 25 > 2 > 189 - 194

In this first in a series of round table meetings, the 1st World Federation of Hemophilia Gene Therapy Round Table was convened to initiate a global dialogue on the expected challenges and opportunities that a disruptive therapy, such as gene therapy, will bring to the haemophilia community. Perspectives from key stakeholder groups, including healthcare professionals, regulators, payors, people with...

article

Test‐retest properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire and its constituent domains

Chatree Chai‐Adisaksopha, Mark W. Skinner, Randall Curtis, Neil Frick, more

Haemophilia > 25 > 1 > 75 - 83

Background The Patient Reported Outcomes, Burdens and Experiences (PROBE) study aims to develop and validate questionnaire for assessing health status in patients with haemophilia and participants without bleeding disorders. Objective To investigate the test‐retest properties of the PROBE questionnaire. Methods The PROBE questionnaire covers four domains and is comprised of 29 questions. People...

article

Authors' Reply to Courtney Suggs and Colleagues’ Comment on: “Mixed Approach Retrospective Analyses of Suicide and Suicidal Ideation for Brand Compared with Generic Central Nervous System Drugs”

Richard A. Hansen, Ning Cheng, Md. Motiur Rahman, Yasser Alatawi, more

Drug Safety > 2018 > 41 > 12 > 1423-1424

This reply refers to the article available at https://doi.org/10.1007/s40264-018-0726-3.

article

Emergency department hyperoxia is associated with increased mortality in mechanically ventilated patients: a cohort study

David Page, Enyo Ablordeppey, Brian T. Wessman, Nicholas M. Mohr, more

Critical Care > 2018 > 22 > 1 > 1-10

Background Providing supplemental oxygen is fundamental in the management of mechanically ventilated patients. Increasing amounts of data show worse clinical outcomes associated with hyperoxia. However, these previous data in the critically ill have not focused on outcomes associated with brief hyperoxia exposure immediately after endotracheal intubation. Therefore, the objectives of this study were...

article

Mixed Approach Retrospective Analyses of Suicide and Suicidal Ideation for Brand Compared with Generic Central Nervous System Drugs

Ning Cheng, Md. Motiur Rahman, Yasser Alatawi, Jingjing Qian, more

Drug Safety > 2018 > 41 > 4 > 363-376

Introduction Several different types of drugs acting on the central nervous system (CNS) have previously been associated with an increased risk of suicide and suicidal ideation (broadly referred to as suicide). However, a differential association between brand and generic CNS drugs and suicide has not been reported. Objectives This study compares suicide adverse event rates for brand versus generic...

article

Preharvest UV-C radiation impacts strawberry metabolite content and volatile organic compound production

Joseana Severo, Isadora Rubin de Oliveira, Romain Bott, Carine Le Bourvellec, more

LWT - Food Science and Technology > 2017 > 85 > PB > 390-393

UV-C radiation, widely known for preventing decay and increasing fruit quality, was applied to ‘Camarosa’ strawberries during cultivation (preharvest) and harvested fruits were divided into external and internal tissue portions. UV-C promoted increase in total polyphenolic and volatile organic content, mostly in proanthocyanidins, anthocyanins and esters in external tissues. UV-C treatment increased...

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INFONA - science communication portal

Search results for: David Page

Test–retest reliability of a mobile application of the patient reported outcomes burdens and experiences (PROBE) study

A national assessment of standards of care for inherited bleeding disorders in Canada

Patient‐derived assessment tool using musculoskeletal ultrasound for validation of haemarthrosis

Invisible bleeds: Lived experiences and barriers to care for men with hemophilia

Evaluation of the sexual health in people living with hemophilia

Vaccination against COVID‐19: Rationale, modalities and precautions for patients with haemophilia and other inherited bleeding disorders

“They don’t really take my bleeds seriously”: Barriers to care for women with inherited bleeding disorders

Non‐severe haemophilia: Is it benign? – Insights from the PROBE study

Gene therapy to cure haemophilia: Is robust scientific inquiry the missing factor?

“Everything was blood when it comes to me”: Understanding the lived experiences of women with inherited bleeding disorders

Setting the scene: Historical overview of challenges and what led to advances in comprehensive care in developed countries, the Canadian experience

Tumor cell sensitivity to vemurafenib can be predicted from protein expression in a BRAF-V600E basket trial setting

From the voices of people with haemophilia A and their caregivers: Challenges with current treatment, their impact on quality of life and desired improvements in future therapies

Exploring regional variations in the cross‐cultural, international implementation of the Patient Reported Outcomes Burdens and Experience (PROBE) study

The 1st WFH Gene Therapy Round Table: Understanding the landscape and challenges of gene therapy for haemophilia around the world

Test‐retest properties of the Patient Reported Outcomes, Burdens and Experiences (PROBE) questionnaire and its constituent domains

Authors' Reply to Courtney Suggs and Colleagues’ Comment on: “Mixed Approach Retrospective Analyses of Suicide and Suicidal Ideation for Brand Compared with Generic Central Nervous System Drugs”

Emergency department hyperoxia is associated with increased mortality in mechanically ventilated patients: a cohort study

Mixed Approach Retrospective Analyses of Suicide and Suicidal Ideation for Brand Compared with Generic Central Nervous System Drugs

Preharvest UV-C radiation impacts strawberry metabolite content and volatile organic compound production

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