Search results for: L. Ebony Boulware

Items from 1 to 20 out of 51 results

article

Need for improvements in simultaneous heart‐kidney allocation: The limitation of pretransplant glomerular filtration rate

Brian I. Shaw, Mariya L. Samoylova, Scott Sanoff, Andrew S. Barbas, more

American Journal of Transplantation > 21 > 7 > 2468 - 2478

The incidence of simultaneous heart‐kidney transplant (SHK) has increased markedly in the last 15 years. There are no universally agreed upon indications for SHK vs. heart alone (HA) transplant, and center evaluation processes vary widely. We utilized Scientific Registry of Transplant Recipients data from 2003 to 2017 to quantify changes in the practice of SHK, examine the survival of SHK vs. HA,...

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Dismantling structural racism as a root cause of racial disparities in COVID‐19 and transplantation

Tanjala S. Purnell, Dinee C. Simpson, Clive O. Callender, L. Ebony Boulware

American Journal of Transplantation > 21 > 7 > 2327 - 2332

As the United States faces unparalleled challenges due to COVID‐19, racial disparities in health and healthcare have once again taken center stage. If effective interventions to address racial disparities in transplantation, including those magnified by COVID‐19, are to be designed and implemented at the national level, it is first critical to understand the complex mechanisms by which structural,...

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Transplant social worker and donor financial assistance to increase living donor kidney transplants among African Americans: The TALKS Study, a randomized comparative effectiveness trial

L. Ebony Boulware, Debra L. Sudan, Tara S. Strigo, Patti L. Ephraim, more

American Journal of Transplantation > 21 > 6 > 2175 - 2187

Lack of donors hinders living donor kidney transplantation (LDKT) for African Americans. We studied the effectiveness of a transplant social worker intervention (TALK SWI) alone or paired with living donor financial assistance to activate African Americans’ potential living kidney donors. African Americans (N = 300) on the transplant waiting list were randomly assigned to usual care; TALK SWI; or...

article

African Americans’ discussions about living‐donor kidney transplants with family or friends: Who, what, and why not?

Nicole DePasquale, Matthew J. Ellis, Debra L. Sudan, Patti L. Ephraim, more

Clinical Transplantation > 35 > 4 > n/a - n/a

Background Although discussions with family or friends can improve access to living‐donor kidney transplantation (LDKT), they remain an understudied step in the LDKT process. Methods Among 300 African American transplant candidates, we examined how sociodemographic, clinical, LDKT‐related, and psychosocial characteristics related to the occurrence of LDKT discussions with family or friends. We...

article

Ensuring long‐term equity after pediatric liver transplantation

Lisa M. McElroy, Debra L. Sudan, L. Ebony Boulware

American Journal of Transplantation > 20 > 6 > 1480 - 1481

article

Associations of perceived information adequacy and knowledge with pursuit of live donor kidney transplants and living donor inquiries among African American transplant candidates

Ashley N. Cabacungan, Matthew J. Ellis, Debra Sudan, Tara S. Strigo, more

Clinical Transplantation > 34 > 3 > n/a - n/a

We studied associations between perceived adequacy of live donor kidney transplant (LDKT) information or knowledge with pursuit of LDKT or receipt of live donor inquiries among 300 African American kidney transplant candidates. Participants reported via questionnaire how informed or knowledgeable they felt regarding LDKT. Participants also reported their pursuit of LDKT, categorized as “low” (no discussion...

article

Trust in American Medicine: A Call to Action for Health Care Professionals

Dinushika Mohottige, L. Ebony Boulware

Hastings Center Report > 50 > 1 > 27 - 29

Medical mistrust has a well‐documented harmful impact on a range of patients’ health behaviors and outcomes. It can have such egregious downstream effects on so many aspects of medicine—from clinical trial participation to health care use, timely screening, organ donation, and treatment adherence—that it is sometimes described as one of the social determinants of health. In the article “Trust, Risk, and Race in American Medicine,” Laura Specker Sullivan makes the compelling case that trust is essential to building a therapeutic alliance in which effective, high‐quality health care can be delivered and received. As a complement to her suggestion that health care providers take an active role in mitigating mistrust by demonstrating “not only their capacity to be honest and forthright but also their ability to respond to the potential truster's needs,” we recommend that key health care professionals commit to five actions...

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Association of functional and structural social support with chronic kidney disease among African Americans: the Jackson Heart Study

Rasheeda K. Hall, Clemontina A. Davenport, Mario Sims, Cathleen Colón-Emeric, more

BMC Nephrology > 2019 > 20 > 1 > 1-9

Background There is limited evidence on the relationship between social support and renal outcomes in African Americans. We sought to determine the association of social support with prevalent chronic kidney disease (CKD) and kidney function decline in an African American cohort. We also examined whether age modifies the association between social support and kidney function decline. Methods We...

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Low use of routine medical care among African Americans with high CKD risk: the Jackson Heart Study

Clarissa J. Diamantidis, Clemontina A. Davenport, Joseph Lunyera, Nrupen Bhavsar, more

BMC Nephrology > 2019 > 20 > 1 > 1-13

Background Use of routine medical care (RMC) is advocated to address ethnic/racial disparities in chronic kidney disease (CKD) risks, but use is less frequent among African Americans. Factors associated with low RMC use among African Americans at risk of renal outcomes have not been well studied. Methods We examined sociodemographic, comorbidity, healthcare access, and psychosocial (discrimination,...

article

Improving Primary Care for Patients With CKD in the Digital Era

L. Ebony Boulware

American Journal of Kidney Diseases > 2018 > 72 > 2 > 159-160

article

Effectiveness of informational decision aids and a live donor financial assistance program on pursuit of live kidney transplants in African American hemodialysis patients

L. Ebony Boulware, Patti L. Ephraim, Jessica Ameling, LaPricia Lewis-Boyer, more

BMC Nephrology > 2018 > 19 > 1 > 1-14

Background African Americans have persistently poor access to living donor kidney transplants (LDKT). We conducted a small randomized trial to provide preliminary evidence of the effect of informational decision support and donor financial assistance interventions on African American hemodialysis patients’ pursuit of LDKT. Methods Study participants were randomly assigned to receive (1) Usual Care;...

article

End‐stage renal disease treatment options education: What matters most to patients and families

Jennifer St. Clair Russell, L. Ebony Boulware

Seminars in Dialysis > 31 > 2 > 122 - 128

Treatment modality education can offer many important benefits to patients and their families. Evidence suggests such education can increase use of home dialysis, reduce catheter use, decrease 90‐day mortality, and increase transplantation. While these benefits are encouraging, not all patients are offered options education and when they are, it may not be presented in a way that is immediately applicable...

article

Hemodialysis Disparities in African Americans: The Deeply Integrated Concept of Race in the Social Fabric of Our Society

Keith C. Norris, Sandra F. Williams, Connie M. Rhee, Susanne B. Nicholas, more

Seminars in Dialysis > 30 > 3 > 213 - 223

End‐stage renal disease (ESRD) is one of the starkest examples of racial/ethnic disparities in health. Racial/ethnic minorities are 1.5 to nearly 4 times more likely than their non‐Hispanic White counterparts to require renal replacement therapy (RRT), with African Americans suffering from the highest rates of ESRD. Despite improvements over the last 25 years, substantial racial differences are persistent...

article

Protocol of the KTFT-TALK study to reduce racial disparities in kidney transplant evaluation and living donor kidney transplantation

Kellee Bornemann, Emilee Croswell, Menna Abaye, Cindy L Bryce, more

Contemporary Clinical Trials > 2017 > 53 > C > 52-59

Living donor kidney transplantation (LDKT) is the optimal treatment for end-stage kidney disease (ESKD). The evaluation process for a kidney transplant is complex, time consuming, and burdensome to the ESKD patient. Also, race disparities exist in rates of transplant evaluation completion, transplantation, and LDKT. In December 2012 our transplant center implemented a streamlined, one-day evaluation...

article

Telehealth Applications to Enhance CKD Knowledge and Awareness Among Patients and Providers

Delphine S. Tuot, L. Ebony Boulware

Advances in Chronic Kidney Disease > 2017 > 24 > 1 > 39-45

CKD affects 13% of the US adult population, causes excess mortality, and is associated with significant sociodemographic disparities. Optimal CKD management slows progression of disease and reduces cardiovascular-related outcomes. Resources for patients and primary care providers, major stakeholders in preventive CKD care, are critically needed to enhance understanding of the disease and to optimize...

article

Reducing Health Inequities in the U.S.

Uchechukwu K.A. Sampson, Robert M. Kaplan, Richard S. Cooper, Ana V. Diez Roux, more

Journal of the American College of Cardiology > 2016 > 68 > 5 > 517-524

The National, Heart, Lung, and Blood Institute convened a Think Tank meeting to obtain insight and recommendations regarding the objectives and design of the next generation of research aimed at reducing health inequities in the United States. The panel recommended several specific actions, including: 1) embrace broad and inclusive research themes; 2) develop research platforms that optimize the ability...

article

Risk Factors for Rapid Kidney Function Decline Among African Americans: The Jackson Heart Study (JHS)

Bessie A. Young, Ronit Katz, L. Ebony Boulware, Bryan Kestenbaum, more

American Journal of Kidney Diseases > 2016 > 68 > 2 > 229-239

Racial differences in rapid kidney function decline exist, but less is known regarding factors associated with rapid decline among African Americans. Greater understanding of potentially modifiable risk factors for early kidney function loss may help reduce the burden of kidney failure in this high-risk population.Prospective cohort study.3,653 African American participants enrolled in the Jackson...

article

Patient Education and Support During CKD Transitions: When the Possible Becomes Probable

Jamie A. Green, L. Ebony Boulware

Advances in Chronic Kidney Disease > 2016 > 23 > 4 > 231-239

Patients transitioning from kidney disease to kidney failure require comprehensive patient-centered education and support. Efforts to prepare patients for this transition often fail to meet patients' needs due to uncertainty about which patients will progress to kidney failure, nonindividualized patient education programs, inadequate psychosocial support, or lack of assistance to guide patients through...

article

The Economic Burden of Chronic Kidney Disease and End-Stage Renal Disease

Virginia Wang, Helene Vilme, Matthew L. Maciejewski, L. Ebony Boulware

Seminars in Nephrology > 2016 > 36 > 4 > 319-330

The growing prevalence and progression of chronic kidney disease (CKD) raises concerns about our capacity to manage its economic burden to patients, caregivers, and society. The societal direct and indirect costs of CKD and end-stage renal disease are substantial and increase throughout disease progression. There is significant variability in the evidence about direct and indirect costs attributable...

article

The OPTN Deceased Donor Potential Study: Implications for Policy and Practice

D. K. Klassen, L. B. Edwards, D. E. Stewart, A. K. Glazier, more

American Journal of Transplantation > 16 > 6 > 1707 - 1714

The Organ Procurement and Transplantation Network (OPTN) Deceased Donor Potential Study, funded by the Health Resources and Services Administration, characterized the current pool of potential deceased donors and estimated changes through 2020. The goal was to inform policy development and suggest practice changes designed to increase the number of donors and organ transplants. Donor estimates used...

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INFONA - science communication portal

Search results for: L. Ebony Boulware

Need for improvements in simultaneous heart‐kidney allocation: The limitation of pretransplant glomerular filtration rate

Dismantling structural racism as a root cause of racial disparities in COVID‐19 and transplantation

Transplant social worker and donor financial assistance to increase living donor kidney transplants among African Americans: The TALKS Study, a randomized comparative effectiveness trial

African Americans’ discussions about living‐donor kidney transplants with family or friends: Who, what, and why not?

Ensuring long‐term equity after pediatric liver transplantation

Associations of perceived information adequacy and knowledge with pursuit of live donor kidney transplants and living donor inquiries among African American transplant candidates

Trust in American Medicine: A Call to Action for Health Care Professionals

Association of functional and structural social support with chronic kidney disease among African Americans: the Jackson Heart Study

Low use of routine medical care among African Americans with high CKD risk: the Jackson Heart Study

Improving Primary Care for Patients With CKD in the Digital Era

Effectiveness of informational decision aids and a live donor financial assistance program on pursuit of live kidney transplants in African American hemodialysis patients

End‐stage renal disease treatment options education: What matters most to patients and families

Hemodialysis Disparities in African Americans: The Deeply Integrated Concept of Race in the Social Fabric of Our Society

Protocol of the KTFT-TALK study to reduce racial disparities in kidney transplant evaluation and living donor kidney transplantation

Telehealth Applications to Enhance CKD Knowledge and Awareness Among Patients and Providers

Reducing Health Inequities in the U.S.

Risk Factors for Rapid Kidney Function Decline Among African Americans: The Jackson Heart Study (JHS)

Patient Education and Support During CKD Transitions: When the Possible Becomes Probable

The Economic Burden of Chronic Kidney Disease and End-Stage Renal Disease

The OPTN Deceased Donor Potential Study: Implications for Policy and Practice

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