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BackgroundIn the terminal stages of neuro‐metabolic diseases, parents can begin to experience a sense of loss even before the child dies, and might accept death prematurely.
CasesA 2.5‐year‐old female patient with Sandoff Disease (diagnosed at 9 months of age), and a 17‐month‐old male Krabbe patient (diagnosed at 5 months of age) were admitted to the hospital with hypernatraemic dehydration and bronchopneumonia,...
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