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Psychosocial outcomes are important in the perspective of boys with haemophilia. However, health‐related quality of life (HRQoL) is based on self‐report, and assumes adequate literacy. Yet, literacy is rarely assessed prior to data collection. This study sought to identify criteria that might indicate the level of literacy of children being recruited for clinical trials and to develop a simple method...
Health‐related quality of life (HRQoL) is an important outcome from the perspective of boys with haemophilia and their parents. Few studies have captured the HRQoL of boys with haemophilia in developing countries. This article reports on the cross‐cultural adaptation of the Canadian Haemophilia Outcomes – Kids Life Assessment Tool (CHO‐KLAT) for use in São Paulo, Brazil. The CHO‐KLAT2.0 was translated...
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