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Introduction
With the development of gene therapy for people with haemophilia (PWH), it is important to understand how people impacted by haemophilia (PIH) and clinicians prioritise haemophilia treatment attributes to support informed treatment decisions.
Objective
To examine the treatment attribute preferences of PIH and clinical experts in the United Kingdom (UK) and to develop a profile of gene...
Objectives
The aim of the Patient preferences to Assess Value IN Gene therapies (PAVING) study was to investigate trade‐offs that adult Belgian people with haemophilia (PWH) A and B are willing to make when choosing between prophylactic factor replacement therapy (PFRT) and gene therapy.
Methods
The threshold technique was used to quantify the minimum acceptable benefit (MAB) of a switch from PFRT...
Introduction
Exploring patient perceptions regarding gene therapies may provide insights about their acceptability to patients.
Objective
To investigate opinions of people with haemophilia (PWH) regarding gene therapies. Moreover, this study aimed to identify patient‐relevant attributes (treatment features) that influence PWH’s treatment choices.
Methods
Semi‐structured individual interviews...
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