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Introduction
Epidemiologic studies suggest that joint bleeding occurs in patients with mild‐to‐moderate haemophilia, including women and girls. However, most previous studies on the impacts of haemophilia focus on men with severe disease.
Aim
To identify unmet needs in men and women with mild‐to‐moderate haemophilia.
Methods
The Pain, Functional Impairment, and Quality of Life (P‐FiQ) study assessed...
Introduction
Health‐related quality of life (HRQoL) is impaired in patients with hemophilia; however, the impact in mild/moderate hemophilia B and affected women is not well characterized.
Objective
To evaluate factors that affect HRQoL in adults with hemophilia B and caregivers of affected children.
Methods
US adult patients and caregivers of affected children completed distinct ~1‐hour online...
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