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Background
Knowledge about sexual health, difficulty with sexual activity and intimacy (sexual difficulty), in people with hemophilia is little understood.
Objectives
The objectives were to determine the prevalence of sexual difficulty in people living with hemophilia (PWH) compared to people with no bleeding disorders (PWNoBD), and to determine factors associated with it.
Methods
This was an...
Background
The Patient Reported Outcomes Burdens and Experience (PROBE) study has developed and validated the PROBE questionnaire for assessing patient‐reported outcomes in people with haemophilia and participants without bleeding disorders.
Objective
To explore the regional variations in the international implementation of the PROBE questionnaire.
Methods
Data were collected from participants...
Background
The Patient Reported Outcomes, Burdens and Experiences (PROBE) study aims to develop and validate questionnaire for assessing health status in patients with haemophilia and participants without bleeding disorders.
Objective
To investigate the test‐retest properties of the PROBE questionnaire.
Methods
The PROBE questionnaire covers four domains and is comprised of 29 questions. People...
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