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BackgroundFew studies have investigated factors influencing participation rates for minority children with a chronic disease in clinical trials. The Silent Cerebral Infarct Multi‐Center Clinical (SIT) Trial provides an opportunity to study the impact of demographic and socio‐economic factors on randomization in a clinical trial among Black children. Our primary objective was to characterize the factors...
BackgroundAdvances in the management of thalassemia have resulted in increased life expectancy and new challenges. We conducted the first survey of education and employment status of people with thalassemia in North America.
ProceduresA total of 633 patients (349 adults and 284 school age children) enrolled in the Thalassemia Clinical Research Network (TCRN) registry in Canada and the U.S. were included...
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