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Background
Patients with adult congenital heart disease (ACHD) report that advance care planning (ACP) is important, and that they want information about prognosis. However, recognizing importance and being willing to participate are different constructs, and how and when to begin ACP and palliative care discussions remains ill‐defined.
Methods
We conducted a cross‐sectional survey of 150 consecutive...
Objective
Overall health care resource utilization by adults with congenital heart disease has increased dramatically in the past two decades, yet little is known about utilization patterns at the end of life. The objective of this study is to better understand the patterns and influences on end‐of‐life care intensity for adults with congenital heart disease.
Methods
We identified a sample of adults...
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