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Inhibitor development complicates haemophilia treatment and may impact caregiver burden. Compare overall burden of caregivers of children with/without inhibitors in the United States using a novel disease‐specific questionnaire and the previously validated CarerQol. An on‐line questionnaire with six burden domains (i.e. emotional stress, personal sacrifice, financial burden, medical management, child's...
Data on the health‐related quality of life (HRQoL) of congenital haemophilia patients with inhibitors (CHwI) and their caregivers are limited. To understand the association between patient demo‐graphics/clinical characteristics with HRQoL among CHwI patients and caregivers, a survey was developed to assess HRQoL with haemophilia‐specific QoL questionnaires (HAEMO‐QoL/HAEM‐A‐QoL). In the cross‐sectional...
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