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Aim
A significant proportion of stoma patients develop a parastomal hernia (PSH), with reported rates varying widely from 5% to 50% due to heterogeneity in the definition and mode of diagnosis. PSHs are symptomatic in 75% of these patients, causing a significant impact on quality of life due to issues with appliance fitting, leakage, skin excoriation and pain. They can also lead to emergency presentations...
Aim
The aim was to develop and pilot a patient‐reported outcome measure (PROM) to assess symptoms of parastomal hernia (PSH).
Methods
Standard questionnaire development was undertaken (phases 1–3). An initial list of questionnaire domains was identified from validated colorectal cancer PROMs and from semi‐structured interviews with patients with a PSH and health professionals (phase 1). Domains...
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