Search results for: Adrienne H. Kovacs

Items from 1 to 20 out of 42 results

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Anxiety and Depression in Adults with Congenital Heart Disease: When to Suspect and How to Refer

Alexandra Roseman, Adrienne H. Kovacs

Current Cardiology Reports > 2019 > 21 > 11 > 1-6

Purpose of Review Adults with congenital heart disease face many potential psychosocial challenges. This review focuses on their experiences of clinically significant anxiety and depression and provides recommendations for appropriately timed referrals to mental health professionals. Recent Findings Adults with congenital heart disease have a higher probability of experiencing symptoms consistent...

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Too little too late? Communication with patients with congenital heart disease about challenges of adult life

Lisa X. Deng, Lacey P. Gleason, Katherine Awh, Abigail May Khan, more

Congenital Heart Disease > 14 > 4 > 534 - 540

Objective To investigate the experiences and communication preferences of adult patients with congenital heart disease (CHD) in the domains of employment, insurance, and family planning. Design Patients ≥ 18 years of age completed a questionnaire about experiences and communication preferences regarding employment, health insurance, and family planning. Results Of 152 patients (median age = 33 years,...

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Education as important predictor for successful employment in adults with congenital heart disease worldwide

Maayke A. Sluman, Silke Apers, Judith K. Sluiter, Karen Nieuwenhuijsen, more

Congenital Heart Disease > 14 > 3 > 362 - 371

Background Conflicting results have been reported regarding employment status and work ability in adults with congenital heart disease (CHD). Since this is an important determinant for quality of life, we assessed this in a large international adult CHD cohort. Methods Data from 4028 adults with CHD (53% women) from 15 different countries were collected by a uniform survey in the cross‐sectional...

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Narrative analysis of adults with complex congenital heart disease: Childhood experiences and their lifelong reverberations

Michelle Keir, Barbara Bailey, Angela Lee, Adrienne H. Kovacs, more

Congenital Heart Disease > 13 > 5 > 740 - 747

Background With access to surgical care, >90% of today's infants with congenital heart disease (CHD) will reach adulthood. During childhood, survivors accrue a wealth of health care experience and develop strategies for navigating life with a chronic disease. Methods Seeking to learn from this individualized process, we invited adults with complex CHD to participate in narrative analysis—an...

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A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan circulation

Christina E. Holbein, Nicholas D. Fogleman, Kevin Hommel, Silke Apers, more

Congenital Heart Disease > 13 > 3 > 392 - 400

Objective First, to compare QOL and illness perceptions between patients with a Fontan circulation and patients with anatomically simple defects (ie, atrial septal defects [ASD] or ventricular septal defects [VSD]). Second, to explore illness perceptions as a mediator of the association between congenital heart disease (CHD) diagnosis and QOL. Design Cross‐sectional observational study. Setting...

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Physical activity perceptions and behaviors among young adults with congenital heart disease: A mixed‐methods study

Adam McKillop, Brian W. McCrindle, Gina Dimitropoulos, Adrienne H. Kovacs

Congenital Heart Disease > 13 > 2 > 232 - 240

Objective A physically active lifestyle can help maintain positive physical and psychosocial health outcomes among adults with congenital heart disease (CHD). This study explored the physical activity perceptions and behaviors among young adults with CHD. Design This was a cross‐sectional, mixed‐methods study that included objectively measured physical activity assessment (accelerometer), individual...

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Phenotype, management and predictors of outcome in a large cohort of adult congenital heart disease patients with heart failure

Alexander Van De Bruaene, Edward J. Hickey, Adrienne H. Kovacs, Andrew M. Crean, more

International Journal of Cardiology > 2018 > 252 > C > 80-87

Although heart failure (HF) is the leading cause of premature death in adult congenital heart disease (ACHD), little population-specific data exist. This study reports early experience from a dedicated, sub-specialty adult congenital heart disease-heart failure (ACHD-HF) clinic, aiming to identify risk factors for adverse outcome.Between 2012 and 2015, 126 patients (57% male) attended the ACHD-HF...

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Patient-reported outcomes in adults with congenital heart disease: Inter-country variation, standard of living and healthcare system factors

Philip Moons, Adrienne H. Kovacs, Koen Luyckx, Corina Thomet, more

International Journal of Cardiology > 2018 > 251 > C > 34-41

Geographical differences in patient-reported outcomes (PROs) of adults with congenital heart disease (ConHD) have been observed, but are poorly understood. We aimed to: (1) investigate inter-country variation in PROs in adults with ConHD; (2) identify patient-related predictors of PROs; and (3) explore standard of living and healthcare system characteristics as predictors of PROs.Assessment of Patterns...

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Illness perceptions in adult congenital heart disease: A multi-center international study

Jessica Rassart, Silke Apers, Adrienne H. Kovacs, Philip Moons, more

International Journal of Cardiology > 2017 > 244 > C > 130-138

Illness perceptions are cognitive frameworks that patients construct to make sense of their illness. Although the importance of these perceptions has been demonstrated in other chronic illness populations, few studies have focused on the illness perceptions of adults with congenital heart disease (CHD). This study examined (1) inter-country variation in illness perceptions, (2) associations between...

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Red Flags for Maltese Adults with Congenital Heart Disease: Poorer Dental Care and Less Sports Participation Compared to Other European Patients—An APPROACH-IS Substudy

Maryanne Caruana, Silke Apers, Adrienne H. Kovacs, Koen Luyckx, more

Pediatric Cardiology > 2017 > 38 > 5 > 965-973

Studies in recent years have explored lifestyle habits and health-risk behaviours in adult congenital heart disease (ACHD) patients when compared to controls. The aim of this study was to investigate differences in lifestyle habits between Maltese and other European ACHD patients. Data on alcohol consumption, cigarette smoking, substance misuse, dental care and physical activity collected in 2013–2015...

article

Contraceptive Practices of Women With Complex Congenital Heart Disease

Pamela D. Miner, Mary M. Canobbio, Dorothy D. Pearson, Mary Schlater, more

The American Journal of Cardiology > 2017 > 119 > 6 > 911-915

Understanding the contraceptive practices of women with complex congenital heart disease (CHD) and providing them individualized contraception counseling may prevent adverse events and unplanned high-risk pregnancies. Given this, we sought to examine the contraceptive practices in women with CHD, describe adverse events associated with contraceptive use, and describe the provision of contraception...

article

Advance Care Planning in Adults with Congenital Heart Disease: A Patient Priority

Lisa X. Deng, Lacey P. Gleason, Abigail M. Khan, David Drajpuch, more

International Journal of Cardiology > 2017 > 231 > C > 105-109

Adult congenital heart disease (ACHD) patients with moderate or great defect complexity are at risk for premature death. Although early engagement in advance care planning (ACP) is recommended, previous research suggests that it seldom occurs.This study investigated ACHD patient preferences for ACP and factors that impact preferences. ACHD patients completed an ACP preferences questionnaire, the Hospital...

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Hopelessness among adults with congenital heart disease: Cause for despair or hope?

Bahareh Eslami, Adrienne H. Kovacs, Philip Moons, Kyomars Abbasi, more

International Journal of Cardiology > 2017 > 230 > C > 64-69

Adults with congenital heart disease (CHD) face unique life courses and challenges that may negatively influence their psychological functioning. The aims of this study were to (1) examine the level of hopelessness among adults with CHD in comparison with non-CHD participants and (2) identify correlates of elevated hopelessness among adults with CHD.We enrolled 347 patients with CHD (18–64years, 52...

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Readiness for Transition to Adult Health Care for Young Adolescents with Congenital Heart Disease

Kimberly T. Stewart, Nita Chahal, Adrienne H. Kovacs, Cedric Manlhiot, more

Pediatric Cardiology > 2017 > 38 > 4 > 778-786

This study evaluates transition readiness, medical condition knowledge, self-efficacy, and illness uncertainty in young adolescents (ages 12 to 15 years) with congenital heart disease (CHD), and medical, patient, and parental factors associated with transition readiness. We enrolled 82 patients with moderate or complex CHD (n = 36, 44% male; mean age 13.6 ± 1.3 years), and their parents. Patients...

article

“Frontiers in Fontan failure: A summary of conference proceedings”

Camden Hebson, Wendy Book, Robert W. Elder, Ryan Ford, more

Congenital Heart Disease > 12 > 1 > 6 - 16

“Frontiers in Fontan Failure” was the title of a 2015 conference sponsored by Children's Healthcare of Atlanta and Emory University School of Medicine. In what is hoped to be the first of many such gatherings, speakers and attendees gathered to discuss the problem of long‐term clinical deterioration in these patients. Specific focuses included properly defining the problem and then discussing different...

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An Integrated Adult Congenital Heart Disease Psychology Service

Meaghan Ferguson, Adrienne H. Kovacs

Congenital Heart Disease > 11 > 5 > 444 - 451

ObjectiveNorth American adults with congenital heart disease (CHD) are at increased risk of mood and anxiety disorders, although there are no published data on psychological treatment. In order to provide guidance to adult CHD (ACHD) programs considering the integration of psychological care, the aim of this study was to provide a comprehensive description of a specialized ACHD psychological service...

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Quality of Life of Adults With Congenital Heart Disease in 15 Countries

Silke Apers, Adrienne H. Kovacs, Koen Luyckx, Corina Thomet, more

Journal of the American College of Cardiology > 2016 > 67 > 19 > 2237-2245

Measuring quality of life (QOL) is fundamental to understanding the impact of disease and treatment on patients’ lives.This study aimed to explore QOL in an international sample of adults with congenital heart disease (CHD), the association between patient characteristics and QOL, and international variation in QOL and its relationship to country-specific characteristics.We enrolled 4,028 adults with...

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Psychosocial Maturity, Autonomy, and Transition Readiness among Young Adults with Congenital Heart Disease or a Heart Transplant

Andrew S. Mackie, Gwen R. Rempel, Sunjidatul Islam, Kathryn Rankin, more

Congenital Heart Disease > 11 > 2 > 136 - 143

ObjectiveThe population of young adults with congenital heart disease (CHD) or a heart transplant (HTx) is growing rapidly. These survivors require lifelong cardiology care and must assume self‐management responsibilities with respect to their health. Accordingly, we sought to assess psychosocial maturity and validity of the Transition Readiness Assessment Questionnaire (TRAQ) in this population....

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Prevalence and Correlates of Post-traumatic Stress Disorder in Adults With Congenital Heart Disease

Lisa X. Deng, Abigail May Khan, David Drajpuch, Stephanie Fuller, more

The American Journal of Cardiology > 2016 > 117 > 5 > 853-857

Post-traumatic stress disorder (PTSD) is associated with adverse outcomes and increased mortality in cardiac patients. No studies have examined PTSD in the adult congenital heart disease (ACHD) population. The objectives of this study were to assess the prevalence of self-reported symptoms of PTSD in patients with ACHD and explore potential associated factors. Patients were enrolled from an outpatient...

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A cluster randomized trial of a transition intervention for adolescents with congenital heart disease: rationale and design of the CHAPTER 2 study

Andrew S. Mackie, Gwen R. Rempel, Adrienne H. Kovacs, Miriam Kaufman, more

BMC Cardiovascular Disorders > 2016 > 16 > 1 > 1-9

Background The population of adolescents and young adults with congenital heart disease (CHD) is growing exponentially. These survivors are at risk of late cardiac complications and require lifelong cardiology care. However, there is a paucity of data on how to prepare adolescents to assume responsibility for their health and function within the adult health care system. Evidence-based transition...

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Search results for: Adrienne H. Kovacs

Anxiety and Depression in Adults with Congenital Heart Disease: When to Suspect and How to Refer

Too little too late? Communication with patients with congenital heart disease about challenges of adult life

Education as important predictor for successful employment in adults with congenital heart disease worldwide

Narrative analysis of adults with complex congenital heart disease: Childhood experiences and their lifelong reverberations

A multinational observational investigation of illness perceptions and quality of life among patients with a Fontan circulation

Physical activity perceptions and behaviors among young adults with congenital heart disease: A mixed‐methods study

Phenotype, management and predictors of outcome in a large cohort of adult congenital heart disease patients with heart failure

Patient-reported outcomes in adults with congenital heart disease: Inter-country variation, standard of living and healthcare system factors

Illness perceptions in adult congenital heart disease: A multi-center international study

Red Flags for Maltese Adults with Congenital Heart Disease: Poorer Dental Care and Less Sports Participation Compared to Other European Patients—An APPROACH-IS Substudy

Contraceptive Practices of Women With Complex Congenital Heart Disease

Advance Care Planning in Adults with Congenital Heart Disease: A Patient Priority

Hopelessness among adults with congenital heart disease: Cause for despair or hope?

Readiness for Transition to Adult Health Care for Young Adolescents with Congenital Heart Disease

“Frontiers in Fontan failure: A summary of conference proceedings”

An Integrated Adult Congenital Heart Disease Psychology Service

Quality of Life of Adults With Congenital Heart Disease in 15 Countries

Psychosocial Maturity, Autonomy, and Transition Readiness among Young Adults with Congenital Heart Disease or a Heart Transplant

Prevalence and Correlates of Post-traumatic Stress Disorder in Adults With Congenital Heart Disease

A cluster randomized trial of a transition intervention for adolescents with congenital heart disease: rationale and design of the CHAPTER 2 study

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