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Objective
This study evaluated factors influencing reproductive decision‐making in families containing multiple individuals with epilepsy.
Methods
One hundred forty‐nine adults with epilepsy and 149 adult biological relatives without epilepsy from families containing multiple affected individuals completed a self‐administered questionnaire. Participants answered questions regarding their belief...
Objective
Studies have found that affected individuals who believe the cause of their disorder is genetic may react in various ways, including optimism for improved treatments and pessimism due to perceived permanence of the condition. This study assessed the psychosocial impact of genetic attribution among people with epilepsy.
Methods
Study participants were 165 persons with epilepsy from multiplex...
ObjectivesRapid advances in genetic research and increased use of genetic testing have increased the emphasis on genetic causes of epilepsy in patient encounters. Research in other disorders suggests that genetic causal attributions can influence patients' psychological responses and coping strategies, but little is known about how epilepsy patients and their relatives will respond to genetic attributions...
Objective
To evaluate parents’ interest in genetic testing of their offspring in families containing multiple individuals with epilepsy.
Methods
Seventy‐seven parents with affected offspring and 173 parents without affected offspring from families containing multiple individuals with epilepsy completed a questionnaire asking about their interest in genetic testing of their offspring. Interest in...
ObjectiveResearch in other disorders suggests that genetic causal attribution of epilepsy might be associated with increased stigma. We investigated this hypothesis in a unique sample of families containing multiple individuals with epilepsy.
MethodsOne hundred eighty‐one people with epilepsy and 178 biologic relatives without epilepsy completed a self‐administered survey. In people with epilepsy,...
ObjectiveTo examine genetic testing preferences in families containing multiple individuals with epilepsy.
MethodsOne hundred forty‐three individuals with epilepsy and 165 biologic relatives without epilepsy from families containing multiple affected individuals were surveyed using a self‐administered questionnaire. Four genetic testing scenarios were presented, defined by penetrance (100% vs. 50%)...
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